Skip to main content

Posts

Showing posts from May, 2018

Blue Sunday

Let me fill you in on 'Blue Sunday'...  If you've read my  About Me , then you'll already know that since becoming chronically ill, a large portion of my support has come from the online community .  Some of those 'online friends', I've actually been lucky enough to meet in person, all thanks to 'Blue Sunday.' What is Blue Sunday? Blue Sunday is a truly wonderful event, that the lovely Anna ( @theslowlane_me ) hosts every year, to raise money & awareness for M.E. Despite her own ill health, she puts so much into organising an annual Tea Party, which falls on the Sunday during  M.E awareness week . The more, the merrier. For anyone local &/or able to travel, to attend the tea party in person, Anna hires a hall & puts on a huge spread of cake . All she asks in return, is that you make a donation for the sum of which you'd expect to pay for Tea & Cake in a coffee shop. If you aren't able to attend the act

CFS/ME Diagnosis

I'll be honest, this is one of my planned posts that I'm least excited about writing, but it needs doing, & now's the perfect time... Everyone's road to diagnosis varies quite extensively. I'm one of the  fortunate ones, as I didn't go through the ordeal of fighting for medical professionals to believe me. In fact, for me, it was quite the opposite. Background. Summer 2015 I was taken into hospital with stroke like symptoms- right side paralysis. Cut long story short, the brain scans came back clear & I was diagnosed with hemiplegic migraines. (Classic migraines + weakness/paralysis) The diagnosis seemed to fit my symptoms, except as time went on, there was one little thing that couldn't quite be explained- the persistent weakness . My right side was, & still is, predominantly the weaker side, but I also had this general weakness all over, that never went away . Fatigue was also an issue, but I put that, as well as brain fog